Education for children with a poor prognosis

reflections on parental wishes and on an appropriate curriculum.

A Closs, A. Burnett

    Research output: Contribution to journalArticle

    Abstract

    This paper examines the wishes expressed by parents in relation to the education of their children who are in the advanced stages of a life-threatening condition. They hope that through participating in education, their children will achieve success or fulfill their potential, experience peer friendship or, at least, companionship, have interests and activities which may distract them from the unpleasant aspects of their condition, leave behind a marker of their existence and above all, experience some aspects of a normal life. The curricular models available upon which education programmes for these children may be based are examined critically in relation to all children's entitlement to an 'appropriate curriculum'. Factors which may impede teachers' willingness and ability to address the educational and other needs of their dying pupils are explored and some positive ways forward are suggested.

    Original languageEnglish
    Pages (from-to)387-394
    Number of pages8
    JournalChild: Care, Health and Development
    Volume21
    Issue number6
    Publication statusPublished - Nov 1995

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    curriculum
    education
    child education
    dying
    friendship
    pupil
    experience
    parents
    ability
    teacher

    Cite this

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    title = "Education for children with a poor prognosis: reflections on parental wishes and on an appropriate curriculum.",
    abstract = "This paper examines the wishes expressed by parents in relation to the education of their children who are in the advanced stages of a life-threatening condition. They hope that through participating in education, their children will achieve success or fulfill their potential, experience peer friendship or, at least, companionship, have interests and activities which may distract them from the unpleasant aspects of their condition, leave behind a marker of their existence and above all, experience some aspects of a normal life. The curricular models available upon which education programmes for these children may be based are examined critically in relation to all children's entitlement to an 'appropriate curriculum'. Factors which may impede teachers' willingness and ability to address the educational and other needs of their dying pupils are explored and some positive ways forward are suggested.",
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    Education for children with a poor prognosis : reflections on parental wishes and on an appropriate curriculum. / Closs, A; Burnett, A.

    In: Child: Care, Health and Development, Vol. 21, No. 6, 11.1995, p. 387-394.

    Research output: Contribution to journalArticle

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    AB - This paper examines the wishes expressed by parents in relation to the education of their children who are in the advanced stages of a life-threatening condition. They hope that through participating in education, their children will achieve success or fulfill their potential, experience peer friendship or, at least, companionship, have interests and activities which may distract them from the unpleasant aspects of their condition, leave behind a marker of their existence and above all, experience some aspects of a normal life. The curricular models available upon which education programmes for these children may be based are examined critically in relation to all children's entitlement to an 'appropriate curriculum'. Factors which may impede teachers' willingness and ability to address the educational and other needs of their dying pupils are explored and some positive ways forward are suggested.

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